Můj bratr nemluví a je kvadriplegik v důsledku onemocnění zvaného leukodystrofie související s genem Tubb4a, známého také jako H-ABC:
My brother is nonspeaking and quadriplegic due to a condition called Tubb4a-related Leukodystrophy also known as H-ABC:
Giving my brother independence again
Co se stalo s Benem?
Chodíš na fyzioterapii?
Jsou ty dlahy na ruce vůbec pohodlné?
Měl něco podobného i Stephen Hawking?
Funguje na úrovni třicetiletého člověka?
Jak Ben jí?
Dá se Benův stav vyléčit?
Bolí ho to?
Jak předcházíte proleženinám?
Jak Ben komunikuje?
Mluví Ben s Elouise?
Opravdu to Ben píše na klávesnici?
Uvažovali jste o Neuralinku?
Je Ben opravdu tak šťastný?
Jak Ben chodí na toaletu?
Proč nosí Ben obličejový štít?
Pořídil si Ben psa?
Jakou hudbu má Ben rád?
What happened to Ben?
Are you doing physical therapy?
Are those arm splints comfortable at all?
Is this what Stephen Hawking had?
Is he operating at the capacity of a 30-year-old?
How does Ben eat?
Can Ben's condition be cured?
Does his condition hurt?
How do you prevent pressure sores?
How does Ben communicate?
Does Ben talk to Elouise?
Is Ben really typing that?
Have you considered Neuralink?
Is Ben really this happy?
How does Ben use the bathroom?
Why does Ben wear a face shield?
Did Ben get a dog?
What music does Ben like?
Revealing the Answers | Life With a Rare Disease
NARBE House
Your Questions Answered
This video goes over your most frequently asked questions about Ben.
https://www.narbehouse.com
Free games built for switch users
https://www.switchedgames.org
NARBE Foundation invests in projects that prove people with complex needs deserve autonomy, connection, and choice. We support the builders and share what works
https://www.narbefoundation.org
Žádné komentáře:
Okomentovat